I highly recommend reading What About the Boy? A Father's Pledge to His Disabled Son by Stephen Gallup. What About the Boy? is a memoir about parents who become dissenters, albeit in the cause of achieving a normal life, for themselves and their child. The memoir is a great example of the unbreakable bond that exists between parents and their children. Stephen and his wife were told nothing could be done to help their son Joseph, and to seek counseling to help them accept that reality. Refusal to accept that advice launched an incredible journey for these two parents in finding a cure and help for their son. This is truly an amazing family, a family who never gave up hope.
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